Showing posts with label hearing loss in children. Show all posts
Showing posts with label hearing loss in children. Show all posts

Wednesday, September 21, 2011

Our Pearl Story... (Part 3) #HopeChangesEverything #BlogParty2011

Thanks for reading these "Pearls" posts and following this latest mini-series. :-)


As Macey continued to grow, there were things about her that were definitely unique. I have told people for years that if I had only had my first child, I might be a pretty opinionated and arrogant parent. It's not that I think Amelia is perfect or that I've parented her perfectly, but it was as if Macey was born with the sole-purpose of making sure momma stays humble! I'll never forget when my first book was completed, published, and printed. I got my first copy in the mail. There really is no feeling quite like it! After all that studying, hard work of writing, teaching the material, re-writing, editing, researching publishing companies, writing some more, and on and on--it seemed like an endless struggle. When it arrived I showed Amelia, and she celebrated with me and said, "Oh Mommy, I am SO proud of you!" Jackson, although only 5 years old at the time, was so happy for me as well (and, in his totally Jackson way, said, "When can I publish MY book?")

I showed Macey and she said, "What does this have to do with me?"And she honestly wasn't trying to be mean or thoughtless. She just wanted to know what my book had to do with her.

From the time of her birth, I knew she loved me. There has always been a very special bond between Macey and me. She didn't warm up much to others at first, and we dubbed her from the start, "Momma's girl." In fact, of my three kids, Macey has never called me "Mommy," always "Momma." I've never doubted she loved me, but I've often doubted whether or not she liked me. (Now, don't get me wrong: I know it's not my job to be liked by my children. I'm just trying to explain something.)

Here are some of the little quirks we noticed:

  • Macey likes hugs (sort of) but usually only the ones she initiates. Even today, if I hug her without asking her first if it's okay, she'll flinch and pull away from me.
  • She is literal to an extreme (SO many examples of this! I think it has helped me become a better communicator.)
  • She doesn't handle change well. (Even something as little --to me--as changing her from being a bus rider to a car rider after school can stress her out.)
  • She tends to be very naive and trusting--which, unfortunately, makes her an easy target for kids who like to take advantage of that.
  • Every negative emotion tends to be expressed as anger or even rage. 
  • If you ask her opinion, she'll give it to you. (Beware! Especially if you're asking how you look in a certain bathing suit. I may never do that again.)
  • She is extremely hyper-sensitive to noise, touch, texture, light, etc. (Her bedroom and wardrobe are full of fuzzy, soft, cozy items.)
  • She doesn't express herself verbally as well as she can express her thoughts/emotions in pictures--word pictures or drawn. In this, she excels!
  • She has a very strict system of organization--it works for her but doesn't make sense to the rest of us.
As Macey entered 3rd grade, I picked up on the fact that her anger issues didn't seem to be anger as much as sadness, feelings of rejection (from kids on the bus, church, school, etc), insecurity, and such. I started using a "Feelings Wheel" (a chart with different emotion words on it) to help her learn how to tell me what was going on inside of her when all we could see on the outside was rage that didn't seem to fit the circumstance.

Something that confused me in all of this was the fact that Macey has always been a "Teacher's Pet" of sorts. From her first experiences in Sunday School and Preschool to her days in Elementary and now Middle School (*Update, she is now in her first year of High School), Macey's teachers and administrators have always LOVED her. I receive so many compliments  from other adults who work with and know Macey. When I've told them the challenges we face with her at home, they look at me like I'm talking about some other kid.

Now, remember, I have three children, so I know that kids usually behave and perform better for others than they do at home where they're safe to be themselves and make mistakes and even act out. But the difference in Macey is vastly different. Night and day different.

Things that don't bother most of us, greatly bother her--physically, emotionally, mentally, and even spiritually. She deals with daily and even moment-by-moment irritations that would go unnoticed by most people.

By the time she got into middle school, I really began to see how things just didn't "click" for Macey in certain areas. I began to see that her struggles weren't simply due to a hearing impairment (and missing cues from people because she didn't hear them). She was getting to an age where it was becoming more and more obvious that there was something else going on.

I've prayed for her for many years now that God would "redeem her filter," because it seemed like she had a filter over her mind that was scrambling messages going in and messages trying to come out.

On the last day of her 6th grade year, I was working in my office here at the house, and I got a phone call I never expected to ever receive...


To be continued...

Tuesday, September 20, 2011

Our Pearl Story... (Part 2) #HopeChangesEverything #BlogParty2011

When Macey, who is now 14 years old (until 9-22-11 when she'll turn 15), was a baby, she did just about all of the things other babies do--she just did them later than most babies. I've observed over the years of having this front-row-seat view into her life, that it might take Macey longer to get something than others, but once she does, she's got it. The process might take longer (like turning over from tummy to back, learning to ride a bike, speaking clearly, etc), but there's no backsliding for her.

Because my family has a genetic hearing loss (which I also have), I paid close attention to each of my children and their ability to hear from the time they were born. All of them passed their hearing test in the hospital and in those early months of hearing tests. Nevertheless, I wanted to continue to keep tabs on this because for all of us in the family with a hearing loss, none of us had the loss at birth.

When Macey was two, she only said a few words, and maybe just a few very small sentences. Even when she did begin talking more (around 3- 3 1/2) she had speech issues and said some of the most adorable things I've ever heard! She had a soft green blanket that went everywhere with her, and I can still hear her call it her "ween ranklet." Her favorite color was green. Well, looking back, I don't know if it was her favorite--but because she had gotten a "Larry" toy (Veggie-tales) for Christmas when she was two, she thought anything and everything that was green was hers. She got so upset at perfect strangers for driving her ween twuck!
Macey, Shelley, and Amelia 

We discovered around her 4th birthday that Macey did have a hearing impairment. I'll never forget the day when I dropped her older sister, Amelia, off at 1st grade. Macey was in the back seat in her car seat, and I normally had the rear-view mirror pointed at her so I could see her. Only that day, I didn't have it facing her. I said something to her and she said, "Mommy, I can't hear you. I can't see your mouth."

We made an appointment with an audiologist right away and found out that, sure enough, Macey has a reverse-slope hearing loss in both ears. My heart was broken. I felt so many emotions all at once. But most of all, I felt determined to get her whatever help we could get her to help her learn how to live in a hearing world and to thrive because of her impairment, not in spite of it. It wasn't long before Macey had her own set of hot pink hearing aids that she proudly showed off to everyone! We got her enrolled in a wonderful preschool hearing impaired program, and she began to do really well. Her speech improved by the end of the school year and we felt like we had a handle on what was going on with her.

I still wish, though, that I had known then what I know now....

(More to come, stay tuned...)

Monday, October 18, 2010

Pearls... (Part 2)

When Macey, who is now 14 years old, was a baby, she did just about all of the things other babies do--she just did them later than most babies. I've observed over the years of having this front-row-seat view into her life, that it might take Macey longer to get something than others, but once she does, she's got it. The process might take longer (like turning over from tummy to back, learning to ride a bike, speaking clearly, etc), but there's no backsliding for her.

Because my family has a genetic hearing loss (which I also have), I paid close attention to each of my children and their ability to hear from the time they were born. All of them passed their hearing test in the hospital and in those early months of hearing tests. Nevertheless, I wanted to continue to keep tabs on this because for all of us in the family with a hearing loss, none of us had the loss at birth.

When Macey was two, she only said a few words, and maybe just a few very small sentences. Even when she did begin talking more (around 3- 3 1/2) she had speech issues and said some of the most adorable things I've ever heard! She had a soft green blanket that went everywhere with her, and I can still hear her call it her "ween ranklet." Her favorite color was green. Well, looking back, I don't know if it was her favorite--but because she had gotten a "Larry" toy (Veggie-tales) for Christmas when she was two, she thought anything and everything that was green was hers. She got so upset at perfect strangers for driving her ween twuck!

We discovered around her 4th birthday that Macey did have a hearing impairment. I'll never forget the day when I dropped her older sister, Amelia, off at 1st grade. Macey was in the back seat in her car seat, and I normally had the rear-view mirror pointed at her so I could see her. Only that day, I didn't have it facing her. I said something to her and she said, "Mommy, I can't hear you. I can't see your mouth."

We made an appointment with an audiologist right away and found out that, sure enough, Macey has a reverse-slope hearing loss in both ears. My heart was broken. I felt so many emotions all at once. But most of all, I felt determined to get her whatever help we could get her to help her learn how to live in a hearing world and to thrive because of her impairment, not in spite of it. It wasn't long before Macey had her own set of hot pink hearing aids that she proudly showed off to everyone! We got her enrolled in a wonderful preschool hearing impaired program, and she began to do really well. Her speech improved by the end of the school year and we felt like we had a handle on what was going on with her.

I still wish, though, that I had known then what I know now....

(More to come, stay tuned...)